Friday, September 21, 2007
Lara Joslyn
He was diagnosed with pancreatic cancer in March. It has not been an easy battle so far, but he has been an inspiration to his family and friends through it all. Dave, my finance, participated in a TNT triathlon in April.
Dave found out a few weeks before the triathlon about his dad's diagnosisand dedicated his race to his father. So now I am doing the same.
When I am not feeling motivated to run in the morning, I think of Walter and the pain he is in and it helps me get out of bed. When I want to stop running because I am tired or my feet hurt or it is hot (like during our 16 mile run), I think of Walter and remember why I am running in the first place.
Pancreatic cancer is a horrible disease and there is no known cure for it. But Walter and the entire Lind family (nicknamed Team Lind by their friends) are taking it one day at a time and are enjoying their time together.
Lara Joslyn
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Friday, September 14, 2007
Jane Luke
Aunt Marge lived almost her entire life in Milton, Massachusetts, in the home where she grew up. She never married, and never had children. Therefore, her only sister, my mother, and her family (myself, my 4 siblings and our father), were her family. Since we lived in Northern Virginia, our times with Aunt Marge were limited but precious. Every year, she would be with us for our family vacations, and she always came to Virginia on her birthday and Christmas. Aunt Marge always made the little things in life special. For birthdays and holidays, she would spend endless hours shopping for the perfect gift and card for each and every person. On Christmas Eve, we couldn't wait to help Marge make her traditional Swedish Coffee cake for Christmas morning.
For years, we tried to convince our Aunt to move to Virginia where she would be closer to us and the 13 grandchildren. It wasn't until she was diagnosed with Lymphoma that she finally agreed to leave the only home she ever knew to begin a new chapter of her life here in Virginia. She quickly adjusted to her new surroundings and loved having her nieces, nephew and grand nieces and nephews close by. She truly enjoyed the regular visits and having family close by to take her shopping or to doctors appointments. Unfortunately, our time with Aunt Marge in Virginia was much shorter than anyone expected. Only six months after she moved to Virginia, our loving Aunt Marjory passed away. As difficult as the loss has been for all of us, we cherish the many memories of an aunt who was so loving and family oriented.
I have never been a runner, but was inspired by friends who were taking on this challenge, but also by the Team in Training Organization. I am so happy to take on the physical challenge, but also to be able to raise funds for such a wonderful organization, the Leukemia and Lymphoma Society.
Jane
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Friday, September 7, 2007
John Park, Jr.
It's hard to believe that it has been seven years since our son Daniel was diagnosed with marginal zone monocytoid B-cell lymphoma. During this time, we have had wonderful resources available to us for Dan's prompt diagnosis, treatment (radiation), and follow-up. Thankfully, there has been no indication of a return of Dan's cancer. He's a 2006 UVA graduate. If you visit Charlottesville, stop into The Virginian, the restaurant Dan is co-managing.
It was an incredible shock when we first learned, in the Spring of his junior year of high school, that Dan had cancer. The diagnosis was made after a series of events: an enlarged lymph node under Dan's neck that he brought to our attention (we thought it was acne); Dan's pediatrician who "thought it was nothing" but referred him to a specialist; the specialist who "thought it was nothing" but decided to remove and examine it to be safe; the pathologists who couldn't visually detect a problem but referred it on for further tests; test results that detected an "anomaly"; and finally, diagnosis by a well-respected oncologist at NIH.
The roller coaster continued as we found out more about the cancer Dan had and how to treat it. Marginal zone monocytoid B-cell lymphoma had only recently (within the last 10 years) been identified as a cancer, and it was extremely unusual to be found in someone Dan's age (it usually was found in older women). As a result, there was no widely-accepted treatment protocol. We felt uncomfortable having Dan be treated by a doctor who had never seen this cancer or had not treated this cancer in a person Dan's age. So, Pam and I became very familiar with various hospitals and oncologists in hospitals around the country in our search for proper treatment. Ultimately, we found Dr. Tanya Trippett at Memorial Sloan-Kettering Hospital in New York City. Not only was Dr. Trippett familiar with marginal zone monocytoid B-cell lymphoma, she was tracking the disease in the young adult population. Together we decided to have Dan receive 18 days of radiation treatment at Johns Hopkins University Hospital and to involve Dr. Trippett when interpreting all follow-up scans. In the six years of follow-up, there have been many moments of concern (several false positive results early on and a scare just this past summer), but we have been blessed by the fact that Dan can look forward to a life without cancer.
Like any family effected by cancer, we learned more about cancer than we ever wanted to know. From the whole process, we have several observations:
- As bad as it was for us, there are many families which are dealing with much more dire situations. The first time (actually, every time) we visited the pediatric oncology ward, we were struck by the courage exhibited by all the children battling life threatening diseases, and their families who are grasping at any advances in knowledge or technology that will save their child. We essentially arrived at the ward with a 6'4" healthy-looking teenager with all his hair; for many others, it is a daily fight to live.
- You don't know how much support is available for you until you really need it. Our friends and family were wonderful and supportive to us. We didn't realize it at the time, but the Leukemia and Lymphoma Society funded significant research that was directly helping the understanding of Dan's cancer, and the knowledge and technology for his treatment.
Pam and I will never be able to express how blessed we feel having Dan successfully treated. It is for this reason, and in memory of Pam's father, I. Mead Hayward, who died of chronic lymphocytic leukemia in 1991, that we have participated and will continue to participate in TNT.
John
Thursday, August 30, 2007
Kristen Burke
On Mother's Day 2007, Kelly lost her eight year battle against Hodgkin lymphoma at age 36. Kelly graduated from Virginia Tech in 1993 and then went on to receive her Masters of Education at the College of William and Mary in 1994. Kelly taught second grade for one year and first grade for eight years in the Fairfax County (VA) Public School system. The years she taught were years doing what she loved best - working with children. Kelly was a beautiful, loving and inspiring person who always had a smile on her face and a passion to help others. A week each summer she worked as a counselor at Camp Fantastic, a camp for children with cancer. In addition, she tirelessly raised funds and awareness for The Leukemia & Lymphoma Society by participating in several marathons and the annual Light the Night Walk.
Kelly was known for her smile and determination to beat her disease. She never complained nor gave up. When the doctors told her she had 2 – 3 months left to live, she responded "I'll see you in 4". We learned so much from Kelly but most importantly she taught us: Strength, Courage, Love, Determination, Patience, Peace and to BELIEVE. Kelly was an amazing person who touched so many lives.
Now it's the privilege of a group of Kelly's Virginia Tech friends to lessen the ache of our heavy hearts by challenging ourselves and raising money to honor her memory and support those currently battling a blood cancer. We are training to compete in the Nike Women's Marathon - a race Kelly had wanted to do. We have teamed up with Team in Training to raise awareness and funds for leukemia, lymphoma, Hodgkin lymphoma and myeloma.
The following is a poem that Kelly wrote about the "Pros" of having cancer:
Pros
I've learned that I don't have to live alone in my own hell.
I've learned to accept help- and to ask for it as well.
I've learned that my loved ones feel just as helpless as I do.
I've learned from the wisdom of those sharing my experience that what I feel is nothing new.
I've learned that I have a lot to give.
I've learned that I have a lot of life left to live.
I've learned to prioritize the people and places I want to see.
I've learned to be less critical, especially of me.
I've learned I've an amazing amount of people in my life who truly care.
I've learned too, the ones who will really be there.
I've learned the genuine importance of my friends and family.
I've learned that I am stronger than I ever thought I could be.
I've learned that it's okay, not a fault to need someone.
I've learned that life is about people when all's said and done.
I've learned that with their support, the battle's not all uphill.
I've learned that this disease doesn't have to kill.
I've learned, in fact, that cancer Can be overcome.
I know it, because this time, I have won.
-Kelly Linderman
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Wednesday, August 22, 2007
Shannon Royce
Going through chemo was a life altering experience. I will never forget going for my treatments and seeing folks who were clearly so much sicker than I. At two of my treatments, patients went into respiratory arrest and needed emergency attention. Even in my sickest moments, I had hope of feeling better soon. Some of the patients around me did not have that same hope.
One of the difficult side effects of chemo for me was that I could not even walk around the block with my husband without being winded and having heart palpitations. As a faithful exerciser most of my life, this was very frustrating. In the midst of this, I had a friend who trained with TNT on my behalf. She ran for me when I was struggling to even walk around the block.
This year, I am training for the Marine Corps Marathon on behalf of those who can't. It is a reminder to me of how much I have to be grateful for and how blessed I am to be alive.
I run with the hope that one day there will be a cure.
Shannon
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Friday, August 17, 2007
Bob Garman
Year two I found out a fellow retired AF communicator, Lt Col Don Toenjes, was suffering from Mantle Cell Lymphoma and was getting experimental stem cell treatment. We became friends with him and his wife Norma and through their friends and family were able to raise a lot of money for TNT. Since then they have remained loyal donors. His cancer is in remission but still uncurable.
Year three I ran in honor of a deceased two year old from Leukemia (Calvin Keener) who was the son of two AF Majors stationed in St Louis and a 16 year old son of a friend of Norma and Don's who was still getting cancer treatment. His name was Andy Pickerel and him and his family lived in Iowa. Tragically, Andy passed away about 2 weeks before the VA Beach Half Marathon. His family had orange wristbands made for friends and family during his treatment and they were nice enough to send me ten for my teammates that year - the inscription read: BE STRONG AND COURAGEOUS - Duet. 31:6 (AWP). For both VA Beach and Marine Corp Marathon I wore the purple TNT band for Calvin and the orange band for Andy - helped a lot when the next hill seemed a little steep or the weather was a little hot. My wife also became a more active TNT member by joining as a walker for Va Beach and doing her first endurance event ever!
This year I am running in honor of my Mom who is a two-time survivor of breast cancer and Muriel is still walking for her brother who she misses very much. She also manages a Curves gym and several of her members have friends and family fighting cancer.
Go Team,
Bob
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Wednesday, August 8, 2007
Sara Ward
I felt very fortunate to spent time with the patients families at the TNT Picnic this past Saturday evening. I overheard that one little girl said she was looking forward to it all week. I met siblings of a little baby with leukemia. I am not sure if the baby is a boy or girl, but his or her siblings were so happy to see us and we sang Happy Birthday to Nathanial, who was turning Three yesterday - he was one very happy little boy!! These kids are in the hospital every day with their family and their time is not spent doing happy normal little kid things. I think it was great they had something fun to look forward to! Another little girl, Malika, loved the animal paper plates and little treats and she tried to share them with everyone! Another 13 year old boy, Donavan was there with his Dad. Donavan's 16 year old sister was in the hospital and his Mom was sleeping in her room. Ted, their father told me there were families who had it much much worse.
Other families, nurses and staff came in and out of the picnic. Everyone really appreciated the lovely picnic dinner set out for them - even the teenage girl who said something like "I couldnt eat all the fat in the frosted brownies" came back three times for more.....
I'll try not to go on and on like I am tempted to, but I just wanted to say that I felt so lucky that I was able to spend Saturday helping to get food together for this event. And I was so glad that I was able to be there at Georgetown and spend time with the families. They are special people and they are the reason that we get up so early and put in our mileage and raise our funds - to beat blood cancers!
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